HBDCA are thrilled to announce the expansion of their provision to the Kent & Canterbury Hospital with a launch of a one year pilot programme starting today! After the success of our inaugural programme at the Royal London Hospital (RLH) in Whitechapel, Kent & Canterbury Hospital (K&C) reached out to HBDCA with a desire to […]
HBDCA hosts Needle-phobia Workshop
HBDCA was delighted to hold a needle-phobia workshop on 29 May for Local Families with Bleeding Disorders. Meeting parents of children with needle-phobia as well as meeting parents who have needle-phobia themselves, reinforced why this psychological support is so needed. The HBCDA team were humbled at listening to people’s experiences and long-term issues. We hope […]
HBDCA Charitable status becomes official!
HBDCA are thrilled to announce that we have officially received government recognition as a Registered Charity this autumn. We are now a fully-fledged Charitable Incorporated Organisation, regulated by the UK Charity Commission. This is great news not only for the HBDCA team, but for all those who stand to benefit from our activities providing psychosocial […]
Factor 8 interviews Christina Burgess, HBDCA founder
Jason Evans, founder of independent haemophilia support group Factor 8 speaks to our founder and director Christina Burgess about support available for the victims and families of the contaminated blood scandal. Christina talks about the services that HBDCA offers and the potential routes of access that are available to ex-beneficiaries of the Macfarlane Trust, including […]
Reflections on COVID-19 film now available
Members of the bleeding disorders community speak about the impact of Covid-19, and share their tips on coping well during the global pandemic. For those within the bleeding disorders community who may already be vulnerable, the challenges of Covid-19 can activate myriad feelings and concerns. We spoke to some members within the community to understand […]
HBDCA launches Liberty, providing psychological support to the Infected Blood community
HBDCA is pleased to announce the launch of LIBERTY, a dedicated provision under the HBDCA banner servicing the needs of the Infected Blood community. HBDCA Liberty supports people infected and affected by Contaminated Blood through partnering with funding schemes to provide ongoing psychological support. HBDCA, with its unique understanding of the complex issues faced, provides […]
The Haemophilia Society endorse HBDCA
The UK Haemophilia Society have referred members for the first time to HBDCA services, acknowledging the challenging times in which we find ourselves with Covid-19. HBDCA CEO, Christina Burgess, said: “I am delighted that The Haemophilia Society has shared, with its members, our HBDCA initiative to offer free crisis support during the Covid-19 pandemic. It […]
HBDCA appoint Ros Cooper as Ambassador
We’re thrilled to announce today Ros Cooper as HBDCA’s Ambassador. We are delighted to have Ros’ passion and voice as we strive to provide crucial access to psychological support for the UK’s bleeding disorder community. Ros was just a baby when she was diagnosed with severe von Willebrands disorder, and during her university years discovered […]
Self-Care Wellbeing workshop
On 10th November, in conjunction with Local Families with Bleeding Disorders, HBDCA ran an informal wellbeing event in London. In the beautiful grounds of the Royal Foundation of St Katherine, Limehouse, participants had the opportunity to meet with other parents and carers who are living with bleeding disorders and try their hand at a variety […]
Newly Diagnosed Families wellbeing workshop Report
On 27 Sept 2019, HBDCA ran its first Newly Diagnosed Family Day at the Royal London Hospital Haemophilia Centre. Ahead of the workshop, HBDCA sent out a questionnaire to potential attendees with a note explaining the purpose and scope for the session. For many families with a history of bleeding disorders, their child’s diagnosis can […]
